No one person's life is just like anothers. That is how God Made Us.1
As for me, I have always claimed to be unique. As the years have passed2
so quickly, God has shown me what makes My Life unique.3
Everyone life is unique, so as you read this think about what makes you so unique. You will enjoy life to a greater degree and be on the watch for what is next.4
I was born in the deep South raised in the church. Back then, the WHOLE5
family went, my mother, brother, and grandmother--I called her MY Mama--6
That is what Mama said when I called her Mama. My Grandaddy (on Daddy's side), aunts, uncles, and all kin - some I thought were kin till I was grown. (SMILE) 7
At 8 years old, accepted Christ and that when I became unique.8
My dad was at war til I was 8 and then stationed far away til I was 16 years old. He had left with the National Guard after only one year with me. Life was like that with many families. He stayed in touch- Letters to us almost daily and after the war when he got back to the states in 1946. He got home as often as he could.9
After years of being apart, my parents divorced. Some of you have been there. Growing up is another story that I will write about another time.10
I married a good looking airman at the base near by. He took me to a house that was for sale before marriage was mentioned. "Let us just go and look and act like we want to buy it." OK, neat way to spend an afternoon. I really liked it and it had such a nice yard. 11
We drove away and then before he got me home, he stopped and asked if I really like the house. "Yes" "Then will you marry me and live in that house." You can guess the answer. Married close to 49 years now and have had many houses, none as special as that one.12
We later built a larger house to fit our growing family and had our 3rd13
and 4th sons in the new house. Life was so good back then. No TV for awhile yet as we had no time for one. A daughter first, unique also as then when I had 3 sons, she acted like a Mother Hen watching after them. They were always close.14
We traveled with my husband's job for many years. 4 spent in Alaska before we ended in this home, 35 years ago. You know how fast children grow up. They seemed to just be in one phase and then it was "can I use the car?". All finished High school. 15
Our daughter married before the boys got out of school. They had 2 precious daughters. Bill and our second son, Vincent had joined the Navy and left the year their sister, Nancy Jo had her youngest girl. Any grandmother's reading this will know the joy of Grandchildren. 16
Truly Blessed we were. Its 1978 when the boys leave. Vincent is in a car wreck the night before he left for Charlotte. "I'm OK, Nothing keeping me from going. He went first with a Buddy. Bill left with a Buddy soon after in October and is still in the Navy. 17
By the time he finished his basic Vincent was discharged Honorably-- not medical --. He came home with his shoulder a mess. He and I went to see Bill graduate basic and, oh, what a fun time we '3' had.18
Vincent came home and in Jan had surgery on the shoulder. 5 hours later and many people praying, the doctor came out and said "when he got in there- he couldn't find what the x-rays showed." So he had just put it back together and was sure it would be OK now. Many times in Vincent's life, he was hurt and God just seemed to heal him.19
Then Bill married and started having children. He had 4 sons. Nancy had a son years after her girls. Then the Granddaughters married and we have 4 Great-Grands. Blessed - yes. Unique, yes.20
In 1988, I found I had a neurogenic disorder that was passed to me by my mother. She and I went to Johns Hopkins and it was true. We met a doctor, Dr. Hugo Moser and his nurse, Polly Green. They took my genealogy21
and and I was to come home, have my 4 children tested. I have 2 X Gens22
and one was good and one was bad. All my children had a 50/50 chance of having the bad X.23
I told you all along how God has blessed us and how unique I am. Turned 24
out that Nancy Jo and Bill, who had children, were negative. Lee, 31, and Vincent, 30, were positive. We were so blessed and it was more a child's disease. What did we have to fear. Then all of us went to Johns Hopkins. They tested us just as they had when it was just Mama and I.25
Then 6 months later, Mama didn't go and my husband drove up with me and 26
our sons. This trip, Lee would lose his way back to KKI where our rooms were. I thought anyone could as it is a big place. 27
Then, Sweet Dr. Moser asked to talk to Leo and I. We went in his office28
and he told us bad news. He said, Lee had bad Adrenoleukodystrophy.29
We needed to make plans as he didn't have long to live. We just sat there.30
How could that be at his age. "Sometimes it happens. 31
Before you forget how Blessed we are let me tell you. A boy with this disease dies by age 8. Lee was 30 years old. We didn't say much to any one but made plans for the day we would have to act for him. Lee died in 1993 at age 35. 32
Vincent had a different type, it would never be like that with him.33
He may someday be in a wheelchair but he would live. He got married in 1992 and our church helped with the wedding as Lee was in the hospital and we didn't have time. It was a beautiful wedding and truly we were blessed. Don't forget I'm unique and Blessed.34
Lee dying just did not seem to be going to happen. I went and stayed with him every day as no one knew any thing about the disease. I trained a whole class of nurses maybe two. Finally he went to a nursing home.35
It was nice and they were good to him. They would get him up and we could sit out back in the sun. He was not the person he had been. He didn't know up from down. He didn't know about money any more. So much was lose, but he knew Mama and Daddy.36
Christmas 1992 Bill and his family came home and we went to visit Lee. We took gifts and he opened them. It was a Joyful Christmas. We always have all our children in Christmas Eve.37
Strange without Lee, but OK. Christmas Day, when we finished cooking and eating and dishes, I said I was going back and see Lee. I did and one of the nurses took our picture. 38
March 29Th,1993, 3:15PM, Lee left this world of pain and went to Heaven. Lee would have died that day from something no matter because God has told us our days on earth are counted and He knows.39
Vincent and his wife had a son in 1996. A son has his dad's Y not the X.40
His son can't have the disease. All his daughters would have been carriers. His son is 8 years old now.41
For some reason, only God knows, Vincent fell in Dec 2003. He was taken to the hospital and Dec. 29Th 2003 went to a nursing home for rehab. to get him walking again.42
There he couldn't walk- not after he fell- and he got terrible bed sores. Nancy Jo had wanted to take him home with her. Doctor told her, he had to be turned every 2 hours and she couldn't do it like they could. His son was his delight. When we visited, he would be sitting out waiting for us.43
Horror story of the nursing home and finally went back to hospital June 6, 2004. 4 hospitals and a different nursing home in between. His Dad and I stayed with him every day. He pass through Heaven's Gates, Sept. 3RD, 2004. He was my son and also my best friend how could I live without him.44
Vincent was 45 in May 2003. Blessed, Yes, Unique -- Yes.45
I still have all my other children and my husband. I knew my children loved Jesus and I know these 2 are together waiting for the day - we all 46
gather there. 47
If you have read all this and you think some one you love may have a disease like MS but it isn't then read my note. It has been 2 months today since Vincent left us and we miss him. My story is unique. Write yours and I will read it. 48
Author notes
Information can be found at United Leukodystrophy.com
Don't weep for me--I have done enough to fill a pond.
There is more and I will add some poems. I put Numbers on purpose instead of spelling them. Don't be too hard on my writing. It is from my heart.
What did you think? Please comment!
Comments
1 - 24 of 24
-
Thanks for sharing this amazing story. I was transfixed by it, from the time you got married and moved into that house. You have been blessed with great joy in your life as well as great sorrow and yet you are an inspiration to us all. I loved reading this and will read more tomorrow. Thanks again.
-
You've got it!
You will never regret the time, hugs, and I Love You's shared with your children. I am so happy for you. Some live a life time and never know what we do. God gave us our children but He only lent them to us. He can call them Home anytime.
Teach them about the Love of God and how He sent His Only Son to die for us. If Jesus had never been born then I would be wondering "where" are my sons. I know we will be together again.
I must admit it was hard tonight not to call Vincent and wish him Happy New Year. I am glad we met on here and you are special and unique. HAPPY NEW YEAR! She will get over being sick and OHHH how GREATTTT -- Greatgrand children are. If you read some of Lady8 and Beautyqueen03's writes then you know what I mean. Thanks for your knid reply.
-
I wanted you to know that I came to read your amazing story! Your life has been blessed with the closeness of family. You are a unique angel in this world of pain. Your sons were blessed to have you as their mom. I'm sure they are watching you from heaven! I'm sure they are watching your grandchildren. I read about your grandaughters insight to the practical joke that her Uncle Lee pulled on her. Her spirituality is refreshing. Take care and much love and peace.
-
well said
I have lost 3 good friends in the last 2 years. 2 to cancer and 1 to stupidity. Tears are still good. They remind me they are still touching my heart.
I wish you well.
John -
waiting
Do, please, let me know when Uncle Vince tricks you. with both of them in Heaven, I know they are watching us and loving you.
-
to my grandmother just wanted you to know you made me cry not of sad times but happy times....When uncle lee and vince were still with us. When I think of Lee Its almost like he's still here with us.Maybe because of Chris. I can still remember him doing his practical jokes and making me laugh till I cried. Its as though hes never gone Cause I dream about him all the time. Its funny though I remember a couple of christmas's ago I had a dream about the spices and me and him playing a joke on mama. Then on Christmas Eve you gave me his cookbook. It made me laugh because it almost seemed real like that was his joke for me. Now that vince is gone I miss him so. just waiting for his prank to come along. I love you dearly just wanted you to know.
-
This is an amazing story! I picked a random name from the list, clicked on the story, and found this beautiful person who has a very unique life and soul. This is very nicely written. Good job!
~ I.t. -
Great story...or should I say great life story. It was so sweet and sad at the same time, but you seem to have kept a positive look on things. God Bless
~Fairy -
Hi Grandma,Seems your doing great on here! I loved your story and learning a few things I did not even know.I love you and I am so glad you have joined us on here!
Brandi -
wow thank you so much for sharing our story. My life is just begging I am 16 and have faced many challenges all ready many I shouldn't have had to face but your story offers hope and inspiration. Thank you so much for sharing.
~Hippie~ -
I was very touched by this story, and I feel your heart ache and your blessings at having had the time you did with your boys. I have 3 boys and I can not imagine losing 1 let alone 2. May God Bless you and your family.
-
I glad you shared this Jackle, for this is what Allpoetry is about sharing ideas and about life.I soooo sorry about the bad troubles you've had but it will be better soon,I can tell well nice life story and have others out soon k?
-
what a wonderful life story if you don't count the bad stuff in it.b I loved it all really and I want others by you soon!!!!
-
X3! you have had a great deal of sadness haven't you? You know what, even if you lost two sons Jesus is taking a fine good job with them and they are watching just look up and they'll be looking down to see their best mom in the world!
Lost of wishes and prayers here -
Lets just say I truly agree with everyone else about this fantastic story on your life! You had a perfect focus on your life here while it was happy and also sad but you know what we all go through it and so
s all over you. I'll pray for you every night and again very, very nice story!
-
This is such a wonderful story focused on your life! Best wishes 2 u 2. It is sad but it is wrote well!I look forward to your other work on here and who would be hard on your writting it's perfect!
-
I know i cannot understand all the joys and heartaches you have written about but someday i will. And hopefully i will remember what you have written, and thank my god for all the blessings i have and those i will never have.
-
wow this is the best story ever. i feel greatful to read a story so good. thanks fr sharing the best of the best i hope others will be on here by you real soon
-
10/10
you are one of the best poets Grandma! I wrote a poem about you...well it is acrostic but it is still about the love from you.I love you lots and I hope to see alot of writes by you on here very soon!!!
Sadie with lots of love bigger than the sky that never stops!
-
Wow. Just wow. I loved your writing. I personally don't know too much about MS, beyond what they think might cause it. But I have and aunt in a wheelchair because of it, so it was interesting to read what you said. It seems you've led an active life, pray I can do half as well.
God Bless,
Amanda -
i am breathless, i hung on everyword, i am bolstered by your strength, and your courage, the story of your family is a great one, and i just may write mine, young though i am. When i think of loosing my son, my heart breaks, and it almost brings me too my knees. I can not imagine loosing two. You seem to be filled with such grace, and though i cant see you, im sure you glow from your heart being so big. Those who would criticize your writing, need to look at your heart.
-
Sorry about the tears, Jackle, I know you said not to weep for you...please believe me when I say I weep not for you, but with you, and because your story has touched me, left me counting my own blessings even more.
This is such a heart rending story. I must agree, you are truly blessed and unique. God has seen you through many heartaches and left you with the love and understanding that perhaps only another mother and grandmother can fully understand.
I've always thanked God for having five healthy children, their only flaw being a little ornery at times.... but even that's a blessing when I really think about it.
You have a wonderful loving family. You are all very fortunate, very blessed.
An excellent little story, I'm glad I clicked on this
Thank you for sharing this with all of us.
blessings and s
Dee
Edited on Nov 06, 7:24 p.m. because ''. -
this is a very beautiful writting great job.and hope you keep writting because your good at it.(s)
-
Dear Grandma,
I truly enjoyed this write as in learing about the family history and I hope everyone will enjoy this as much as I did.I can't wait for your other writes and I love you very much!
brandi (with lots of love)
Adding your comment:
1 - 24 of 24
